"Get Well Soon" K, I won't.

I've gotten several "get well soon" messages recently. As far as social conventions go, wishing someone well is not the worst.

But "getting well" doesn't really cover my prognosis. It's a dark truth that speaks to a strength of many disabled folks. We live with a casual uber-present mortality that gives us a certain existential advantage.

Even if our illnesses and injuries aren't terminal, we face losses. We see the big picture that everything eventually ends. That is, except for our phases of turning to diets, wellness culture, or other religions to master immortality, but that's a packed tangent.

The point is: witnessing. When I hear or read that you want me to get well soon, I feel unseen.

I'll likely have improvements in some of my conditions, but my POTS doctor said, "A while." I still don't have an endometriosis surgeon. And I've been under big stress for so long it may take a lifetime to understand and address all the tension patterns.

Additionally, where are you? No one gets well in isolation. It doesn't seem like a coincidence that the folks least likely to say, "Get well soon" are the ones who've changed out my dishwasher or taken me to an appointment.

That's the heart of it really. Please, no more platitudes. Please help instead.

Here are some other things you can wish for me:

💞 Consistent support, especially in person.

🥸 Small moments of joy and laughter, even on the hard days.

😍 Feeling seen and understood, not just pitied or reassured.

🕰️ Days where managing my symptoms doesn’t feel like a full-time job.

🐌 Peace with my body and all it’s carrying. (Not a weight reference, but yes, peace with that too.)

🌲Connection, care, and maybe even adventure, even if it's close to home.

I'd like to close by acknowledging that everyone who has wished me well did so from a place of love. I understand it's not your fault we're all dispersed and under-resourced.

I guess I hope society gets well soon. ;)

And just wanted to remind us all that bodies shouldn't need to change for anyone to belong.

Happy Halloween!

<3 Sarah